Here is a picture from a year ago yesterday of Aidan and me. He is dressed in the Thomas scrubs I made him to help make going to the hospital a little less scary. Nice try. A year ago yesterday, our little one had his 4th heart surgery and he wasn't quite 3. It was his 2nd open-heart surgery.
We are both frightened in this picture. Not long after this picture, I had to hand my baby over to the anesthesiologist--one last kiss before the scariest time of our life. We had to wait for them to cut through his previous scar, we had to wait to hear that his heart was stopped. We had to wait to hear that it was started again. It was miserable. It was in the top 5 worst days of my life. All 5 days relate to Aidan's heart condition.
Now here is the good news - he was only in the hospital 5 days. He did fabulous. He is still doing fabulous. He has more energy than I thought any child in the world could have. Our lives have moved on for the better. We bought our first house. Jeff earned his PhD. We have two new cats.
How has this changed Aidan's life? He doesn't stop and pant as much as he used to. He is very afraid of any hospital/doctor visit. He is especially wary of blood tests. He doesn't complain when he is sick. He rarely gets sick but he was sick with a stomach and then intestinal flu this week. He didn't complain - he just got quiet. Very sad to have the quiet in the house because he is such a spirited chatterbox.
How has this changed Jeff's and my lives? The last 4 years existed with a cloud of fear over us. I thought we would immediately feel better and be very happy after the surgery completed. A year later and we still feel a bit battered. We aren't decided about more children. I have had a hard time writing the thank you's to the many generous people that helped us out a year ago (yes - very bad etiquette, I know).
Each week gets better and we are so grateful that our little boy did so well and continues to do so. He has Hypoplastic Right Heart and was treated at the wonderful Children's Hospital of Wisconsin. His amazing surgeon is Dr. James Tweddell. We will never forget everyone who helped us at Children's.
A few more pictures after the jump. They aren't for everyone.
The second picture shows Aidan snuggling his beloved Miss Kitty right after surgery. She also went to the operating room and had a tough week. She had a gown that matched Aidan's scrubs.
The third picture shows Aidan at home and giving a little smile.
The final picture shows Aidan last week. He is showing off a "lion." That's dandelion to you and me. And that is what it should all be about, isn't it? Little boys picking flowers for their mommies.